No parent is prepared to find out that a new baby will have special needs from birth. But when Liliana and Zack Roman’s second daughter, Kara, was born with Stickler’s Syndrome, they found the support they needed with their Kaiser Permanente care team.
Stickler’s Syndrome, a rare genetic condition, affects the eyes, nose, joints, and hearing. At just under three months old, Kara was ready for her first pair of glasses.
Liliana and Zack knew that finding glasses would be tough, because Kara’s nose was affected by her condition and did not have a bridge to hold glasses on. But Kaiser Permanente Vision Essentials optician Nohemi Blancarte found just the trick, by attaching a strap on the back of the glasses to keep them on her face.
“She was so tender-hearted,” said Liliana of Nohemi. “She didn’t make a big deal that Kara was a baby. It made me more relaxed.”
Three years later, Kara is thriving. Now on her seventh pair of glasses, she is walking and talking just like a typical three-year-old.
“We worry about a thousand things with her,” said Liliana. “But her getting good care is not one of them.”